LAAZF Meets With Congressional Leaders

Written by Katie Jaskolski on . Posted in News

LANSING, MI – On July 22-23, 2014, Life as a Zebra Foundation Co-Founders, Katie Dama Jaskolski and Allie Dama, will meet with congressional leaders in Washington, D.C. to discuss the prevalence of invisible illness in the United States.

Meetings have been scheduled with: Senator Debbie Stabenow (D-MI), Representative Mike Rogers (R-MI8), Representative Kerry Bentivolio (R-MI11), Representative Tim Walberg (R-MI7), and Representative Justin Amash (R-MI3).

This trip follows the success Life as a Zebra Foundation experienced after championing a resolution in the Michigan Senate declaring the week of May 25-31, 2014 as Invisible Illness Awareness Week. The Michigan Senate adopted the resolution unanimously on May 21, 2014.

Download the full release.

Dysautonomia

Dysautonomia literally means dysregulation of the autonomic nervous system. The autonomic nervous system is the master regulator of organ function throughout the body. It is involved in the control of heart rate, blood pressure, temperature, respiration, digestion and other vital functions.

Ehlers-Danlos Syndrome

Individuals with EDS have a defect in their connective tissue, the tissue that provides support to many body parts such as the skin, muscles and ligaments. The fragile skin and unstable joints found in EDS are the result of faulty collagen.

Vasculitis

Vasculitis is a family of rare and chronic autoimmune diseases, all characterized by the inflammation of blood vessels. There are more than 15 different vasculitis diseases, all of which can affect people of various ages, races, and genders.