• 5th Annual Benefit Concert

    Save the Date! April 16, 2016

    LAAZF is hosting our 5th Annual Benefit Gala & Concert on April 16, 2016.  More details to be announced soon.

  • 2014 Benefit Gala & Concert

    A look back at our evening of awareness, entertainment, & hope.

    A special thanks to everyone who helped make our April 12, 2014 event a success!

  • Featured Story

    As seen on HOMTV's Community Connection

    Produced by Max Ieuter of HOMTV. This is Katie and Allie's story.

  • We Welcome Donations

    Through financial contributions and volunteering.

    You can donate using any of the donation boxes on our website or, contact us at katie@zebranation.org to learn more about how you can become involved. We thank you for helping us make a difference.

    Donations Volunteer

Zebra News

  • UTMC Partnership Research Project Update

    Please see below for the latest update on Dr. Grubb and his team’s progress on the groundbreaking research project they are currently doing on Dysautonomia that Life as a Zebra Foundation has helped fund.

  • First Annual Y-PIF Award

    It is always our goal to begin our education efforts with our youth. The Life as a Zebra Foundation was so proud when the non-profit ePIFanyNow™ awarded two of Life as a Zebra’s youngest and biggest supporters, Isabelle Wynn and Zoe Ziegler, with the first annual Y-PIF (Youth Passing Kindness Forward) Award on Sunday, May [...]

  • Michigan Invisible Illness Awareness Week

    For the second year in a row, the Michigan Senate unanimously adopted a resolution formally declaring the week of May 24 to 30, 2015 as Invisible Illness Awareness Week in Michigan. Senate Resolution 0063 (2015) was adopted on Tuesday, May 26, following similar action by the House of Representatives. Senate Majority Leader, Arlan Meekhof, introduced [...]

Life As A Zebra Foundation

In medical school, students are taught to diagnose patients based on the condition that’s most likely. This idea goes along with the saying: “When you hear hoofbeats, think horses, not zebras.” The horses are the likely explanation, while the zebras are less likely. A medical zebra, then, is a person with a rare medical condition.

Life as a Zebra Foundation’s Mission

The primary purpose of the Life as a Zebra Foundation is to receive and administer funds for the purpose of education and charitable contributions for education, prevention, treatment, and research of various rare, invisible illnesses including, but not limited to, Ehlers-Danlos Syndrome, Dysautonomia, and Vasculitis.


Dysautonomia literally means dysregulation of the autonomic nervous system. The autonomic nervous system is the master regulator of organ function throughout the body. It is involved in the control of heart rate, blood pressure, temperature, respiration, digestion and other vital functions.

Ehlers-Danlos Syndrome

Individuals with EDS have a defect in their connective tissue, the tissue that provides support to many body parts such as the skin, muscles and ligaments. The fragile skin and unstable joints found in EDS are the result of faulty collagen.


Vasculitis is a family of rare and chronic autoimmune diseases, all characterized by the inflammation of blood vessels. There are more than 15 different vasculitis diseases, all of which can affect people of various ages, races, and genders.